Rare Diseases

Enfermedades Raras

Rare Diseases

The best and cost-effective real world evidence services in Rare diseases

Rare diseases require specialized research and treatment. Our services support the development of therapies for rare conditions. 

Services

Genetic Testing and Screening

Proving support for genetic tests for rare diseases.

Orphan Drug Development

Supporting the development of orphan drugs.

Patient Advocacy and Support

Advocating for and supporting patients with rare diseases.

Adaptive Trial Design

Designing adaptive trials for rare disease research.

Market Access Strategy

Developing strategies for market access.

Medical Education

Educating on rare diseases.

Patient Support Services

Supporting patients with rare diseases.

Drafting Protocols and Submission to Ethics/IRB Committee

Drafting and submission of protocols for rare disease clinical trials to the Ethics/IRB Committee.

Medical Information Contact Center

Answering questions about rare diseases.

RWE Collection and Analysis

Collecting and analyzing real-world evidence in rare diseases.

Market Research Programs

Conducting market research in rare diseases.

Treatment Satisfaction Studies

Evaluating treatment satisfaction among rare disease patients.

Recruitment of KOLs, Investigators, Patients

Engaging key opinion leaders, investigators, and patients for rare conditions research.

Liaising with Medical Societies and Patient Advocacy Groups

Collaborating with medical societies and advocacy groups in rare conditions.

Contact us

We're here to support your research in rare diseases and enhance patients' quality of life. Contact us to explore how our services can make a significant difference in treating and understanding these unique conditions.

Contact us

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